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Breast Cancer (Inflammatory Carcinoma)

My sister was diagnosed this week with breast cancer, specifically
inflammatory carcinoma. We have not been able to find information about
this particular form of cancer.  It WAS described in one book as being
"very rare" and maybe that is why so little information is available.
Can anyone tell us how to find sources of information on the internet on
this subject?  What about book titles we can order from our book store. We
desparately want to know how this cancer acts, what it is going to do to
my sister, what we can do to manage it, what hope do we have?

Carolyn Robertson
c-antiq…@usa.net

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2 Responses to “Breast Cancer (Inflammatory Carcinoma)”

  1. admin says:

    In article <863925089.8…@dejanews.com>, c-antiq…@usa.net wrote:
    >My sister was diagnosed this week with breast cancer, specifically
    >inflammatory carcinoma. We have not been able to find information about
    >this particular form of cancer.  It WAS described in one book as being
    >"very rare" and maybe that is why so little information is available.
    >Can anyone tell us how to find sources of information on the internet on
    >this subject?  What about book titles we can order from our book store. We
    >desparately want to know how this cancer acts, what it is going to do to
    >my sister, what we can do to manage it, what hope do we have?

    There is a new IBC web page at http://www.bestiary.com/ibc/ .  Please feel
    free to mail me privately as well.

    Menya

    Menya Wolfe
    w…@bestiary.com
    http://www.bestiary.com/wolf/

  2. admin says:

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    c-antiq…@usa.net wrote:
    > My sister was diagnosed this week with breast cancer, specifically
    > inflammatory carcinoma. We have not been able to find information
    > about
    > this particular form of cancer.  It WAS described in one book as being

    > "very rare" and maybe that is why so little information is available.
    > Can anyone tell us how to find sources of information on the internet
    > on
    > this subject?  What about book titles we can order from our book
    > store. We
    > desparately want to know how this cancer acts, what it is going to do
    > to
    > my sister, what we can do to manage it, what hope do we have?

    > Carolyn Robertson
    > c-antiq…@usa.net

    > ——————-==== Posted via Deja News
    > ====———————–
    >       http://www.dejanews.com/     Search, Read, Post to Usenet

     Inflammatory breast cancer is a clinical diagnosis made when a
    malignant breast mass is accompanied by local erythema (looking like an
    infection). This unfortunately reflects growth of tumor into the dermal
    blood vessels and lymphatics, which in turn indicates an aggressive
    cancer.
    The primary treatment for inflammatory breast cancer is chemotherapy,
    but unfortunately it isn’t very good. In a young patient, I would
    consider some form of high dose chemotherapy with stem cell rescue. If
    you don’t have a hospital near you involved in that treatment, consider
    Duke, Johns Hopkins, Dana Farber, Allegheny Univ., Mayo, and similar
    centers. Chemotherapy should be given after biopsy, even before
    mastectomy if possible. I would NOT delay chemotherapy to allow for
    radiation.

    For more info, check http://www.oncoweb.com/ (European centers),
    oncolink.upenn.edu, or http://wwwicic.nci.nih.gov/. I wish your sister
    good luck and wish I had something a bit more hopeful to suggest.

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    <HTML>
    c-antiq…@usa.net wrote:

    <BLOCKQUOTE TYPE=CITE>My sister was diagnosed this week with breast cancer,
    specifically
    <BR>inflammatory carcinoma. We have not been able to find information about
    <BR>this particular form of cancer.&nbsp; It WAS described in one book
    as being
    <BR>"very rare" and maybe that is why so little information is available.
    <BR>Can anyone tell us how to find sources of information on the internet
    on
    <BR>this subject?&nbsp; What about book titles we can order from our book
    store. We
    <BR>desparately want to know how this cancer acts, what it is going to
    do to
    <BR>my sister, what we can do to manage it, what hope do we have?

    <P>Carolyn Robertson
    <BR>c-antiq…@usa.net

    <P>——————-==== Posted via Deja News ====———————–
    <BR>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; <A HREF="http://www.dejanews.com/">http://www.dejanews.com/</A>&nbsp;&nbsp;&nbsp;&nbsp;
    Search, Read, Post to Usenet</BLOCKQUOTE>
    &nbsp;Inflammatory breast cancer is a clinical diagnosis made when a malignant
    breast mass is accompanied by local erythema (looking like an infection).
    This unfortunately reflects growth of tumor into the dermal blood vessels
    and lymphatics, which in turn indicates an aggressive cancer.
    <BR>The primary treatment for inflammatory breast cancer is chemotherapy,
    but unfortunately it isn’t very good. In a young patient, I would consider
    some form of high dose chemotherapy with stem cell rescue. If you don’t
    have a hospital near you involved in that treatment, consider Duke, Johns
    Hopkins, Dana Farber, Allegheny Univ., Mayo, and similar centers. Chemotherapy
    should be given after biopsy, even before mastectomy if possible. I would
    NOT delay chemotherapy to allow for radiation.

    <P>For more info, check <A HREF="http://www.oncoweb.com/">http://www.oncoweb.com/</A&gt; (European centers), oncolink.upenn.edu,
    or <A HREF="http://wwwicic.nci.nih.gov/">http://wwwicic.nci.nih.gov/</A&gt;. I wish your sister good luck and wish I
    had something a bit more hopeful to suggest.</HTML>

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